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About Us

Huntington’s Victoria (HV) is a not-for profit organisation that was formed by several Huntington’s disease (HD) community members in 1973 to provide a safe, trusted space to receive support. Since this time, it has continued to evolve from a community-run entity into a professionally-run organisation. The community-focused collaborative nature of the organisation, in association with the complex nature of the disease, has inevitably led to Huntington’s Victoria being the first point of contact for those seeking support.

What is Huntington’s disease?

Huntington’s disease is classed as a genetic neurodegenerative condition that impacts the brain leading to brain cell death. Huntington’s disease impacts the regions of the brain that are responsible for the way we think, move and feel.

Whilst people are not born with Huntington’s disease, they are born with the abnormal gene that will later on cause the symptoms of Huntington’s disease.

Huntington's Victoria - Community Day - Huntington's Disease Australia

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Grab your dream holidays at the HV Gala Ball auctions!

Grab your dream holidays at the HV Gala Ball auctions!

All Gala Ball attendees, here's a sneak peek of some of our dream holiday getaways that will be available for auction at the upcoming Huntington's Victoria Gala Ball. For those who haven't booked a ticket, limited seats still available. Secure your seats now by...

See you all tomorrow!

See you all tomorrow!

We look forward to seeing you all tomorrow at the Community Conference. Rug up in case it rains and you'll have a hot drink and nibbles waiting for you when you arrive. Please following the link below for more information on getting to the venue, parking and...