ENROLL-HD: A Global Resource for Huntington’s Research

Enroll is the world’s largest observational study for Huntington’s disease families.

About Enroll-HD

Enroll is the world’s largest observational study for Huntington’s disease families.

Enroll is a resource for the entire HD community, including patients, families, patient advocates, clinicians and other healthcare professionals, researchers and anyone else with a connection to HD.

To learn more about Enroll-HD, please go to the website.


Why is Enroll-HD needed?

The purpose of Enroll-HD is to create a global database of people affected by HD to foster the development of treatments.


How does Enroll-HD investigate HD?

By collecting data on mood, cognition, movement, quality of life, family histories, and genetic characteristics.


What will we learn from this research?

Enroll-HD is helping us learn about the characteristics of people with HD around the world. Enroll-HD also provides the HD research community worldwide, and us locally, with efficient access to research participants who can help us to test and improve measures of cognition, mood and movement, etc.


For further information about the study including eligibility and participation requirements please contact:

Enroll-HD at Calvary Health Care Bethlehem
Contact: Katie Fitzgerald
Email: [email protected]
Phone: 9595 3355
Address: Neurology Unit, Calvary Health Care Bethlehem 476 Kooyong Road Caulfield Victoria 3162

Enroll-HD at the University of Melbourne
Contact: Dr Anita Goh
Email: [email protected]
Phone: 03 8387 2483
Address: Royal Melbourne Hospital John Cade Building Level 2, Grattan St Parkville Victoria 3052