Tammy was privileged to catch up with the wonderful Paramjit Oberoi, an amazing community member who shared her and her daughter Sheenam’s lived experience with Huntington’s disease which is now Chapter 13 in the Huntington’s Disease Heroes book. On behalf of Huntington’s Victoria, we want to express our appreciation to Paramjit, Sheenam and all other community contributors to the book. Together, these empowering individuals have created an inspiring book with the hopes of reducing the fear and stigma of living with Huntington’s disease. Please show your support by purchasing this book and sharing it with those around you to raise awareness about Huntington’s disease.

50% of the proceeds from book sales will be donated to the Huntington’s Disease Youth Organization (HDYO).

In this book, you will read about:

  • Stories from a scientist who started studying HD after finding out her mother had tested positive for the disease.
  • A young man whose biggest fear was testing gene negative and not inheriting the disease.
  • A woman who grew up in survival mode, unable to express her grief.

HD Heroes is a moving, powerful, and remarkable collection of personal stories from people affected by HD in some way. Their stories must be read by anyone interested in learning more about what makes our HD family community so amazing.

Professor Sarah Tabrizi

HD Doctor & Scientist

Huntington's Victoria - Emma Burnip