Information and Awareness Newsletter

July 2024

Huntington's-Vic-July-newsletter

Welcome to the July edition of our newsletter!

In this issue, we delve into the various factors influencing decision-making regarding predictive testing and offer practical ways to support a loved one preparing for such a significant step. Predictive testing can be a challenging journey, and understanding the nuances can help in providing the best support possible to your loved ones who are making a decision regarding getting tested for Huntington’s disease.

Additionally, we are thrilled to give you a sneak peek into Episode 3 of our Beyond Lab series. This episode features an insightful conversation with Ajantha Rajasekar, a Clinical Trial Manager, who will discuss critical factors to consider before participating in clinical trials. Ajantha’s extensive experience in the pharmaceutical industry provides valuable perspectives on ensuring a safe and ethical clinical trial experience. This interview will be released in a couple of weeks, so stay tuned!

We hope you find this edition informative and supportive as we continue to explore these important topics together.

We hope this information guides you in making the decision regarding predictive testing or evokes questions in your mind that would help you understand your circumstances better or even makes you question the process further. Please remember that discovering your gene status should empower you to make choices in life that suit you best. Feel free to contact us if you want to discuss how you feel or if you have any concerns regarding the testing process.