Information and Awareness Newsletter – January 2025

Information and Awareness Newsletter – January 2025

Information and Awareness Newsletter January Edition Welcome to the first edition of the Information and Awareness Newsletter for 2025! Hear from the team at Huntington’s Victoria on some of their favourite moments of 2024, and take a sneak peak at the events to...
Sage Therapeutics Clinical Trial Update

Sage Therapeutics Clinical Trial Update

Clinical Trial Update: Sage Therapeutics Sage Therapeutics Discontinue Dalzanemdor Trial   We are saddened to share that the clinical trial for dalzanemdor, a drug aimed at improving cognitive challenges for people with Huntington’s disease, has been...
Life Insurance Ban on Genetic Discrimination

Life Insurance Ban on Genetic Discrimination

Australia’s Landmark Move with Life Insurance Life Insurers Prohibited from Using Genetic Tests to Deny Coverage or Increase Premiums   Following the recommendations of a report led by Monash University’s Dr. Jane Tiller and Professor Paul Lacaze, the Australian...
Understanding Genetic Counselling

Understanding Genetic Counselling

Understanding Genetic Counselling Information Sheet   We are excited to announce a new resource available on the Huntington’s Victoria website: an information sheet on genetic counselling, drafted in collaboration with Sachini Poogoda, an Associate Genetic...
A Night to Remember

A Night to Remember

A Night to Remember Go Blue May 22 and Light it Up 4 HD   The 2024 May Awareness Initiatives On May 22, Federation Square in Victoria was glowing in blue as the HD community gathered to raise awareness for Huntington’s disease. We saw an overwhelming turnout,...
Early Bird Tickets!

Early Bird Tickets!

Early Bird Tickets Annual Gala Ball 2024 This premiere annual event is about fun and celebration, but also for learning about the impact that Huntington’s disease has on individuals and families. Attendees include medical and research partners, allied health...