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Thank you for visiting our Virtual Hall. Please take a moment to view the below presentations. These presentations are from our researchers whose presentation were not premiered during our Community Conference.

Day 1

Making Choices as a Young Person

The first section of our conference highlights the experience of being young around Huntington’s Disease. Firstly, we hear from Tiff, Tash and Hayden about their experience of growing up in a family that’s experiencing the effects of Huntington’s Disease. We then hear from Katie and Jamie about the process and decision making that happens if you decide you want to get tested.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.

Day 2

Planning for Now and the Future

The first section of the second day covers topics about how you can get the most of your NDIS plan with some of our NDIS participants talking about their experience and speakers from the HV NDIS team. We also cover strategies in building your HD team to support yourself and family members.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.

Living Well with the Impacts of HD

The second session of the Community Conference highlights personal experiences of living with Huntington’s Disease in conversations with Kylie and Elisha. The Huntington’s Victoria counsellor, Joanne Bevilacqua talks alongside our community speakers, Jaq and Nick about the experience of ‘having the conversation about HD’.

The Q and A session is facilitated by Bronwyn Morkham and covers these same topics with our session speakers.

Making A Difference

This session covers how to make a difference with the Huntington’s Disease community, both locally and globally. We hear from Lauren and Jacob – members of the Hunters riding and fundraising team and Kat former Executive Director of HDYO.

The Q and A session is facilitated by Alan Blackwood and covers these same topics with our session speakers

International Research

The Final Session of Day 1 showcases the incredible work and research that has been conducted internationally, presenting is of Prof. Russel Snell, Prof. Ed Wild, Dr. Paul Zeun and Libby Hewitt and Erin Goodsell from Roche.

The Q and A session is facilitated by Tony Hannan covers these same topics with our session speakers.

Local Research

The Final session of the Community Conference closes the weekend with a showcase of the amazing local research that has been conducted by members of the HRGV group as well as a community conversation about peer support.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.