Future Planning

The first section of our conference highlights some things you can do to plan for the future when it comes to HD. Firstly, we hear from Tony, Brendan and Steven how physical activity can have a positive impact on HD onset and symptoms. We then hear from Katie, Sally and Felix about financial planning – where to start, what to cover and why its important. Finally we hear from Jemma, Linda and Melissa about their experiences with end of life for their loved ones with HD, what palliative care is like and how planning things like a POA, advancer care directive can help in the long run.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.

Services Available

The second session of the Community Conference highlights the services that are available to the HD community. We cover NDIS, Allied Health and the HV Information Service. All sessions cover both the professional and personal experiences of each topic. .

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.

Relationships and HD

This section covers the topic of Relationships, communication and HD. We are privileged to hear two stories from community members about how they balance their caring role with being a partner of someone with HD. We also hear from our HV counsellor JoAnne.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers.

Research

We start this session with a facilitated discussion with professionals from Roche – they cover what is a drug trial, what are the various stages of a drug trial and what is different about a HD drug trail compared with out disease groups.

The Q and A session is facilitated by Tammy Gardner and covers these same topics with our session speakers