(03) 9818 6333 / 1800 063 501 (Toll Free)

Discovering that Huntington’s disease is a part of your genetic history can have a ripple effect on your life and those around you. All at once you can experience a rush of emotions: anger, sadness, confusion, isolation and disconnection from those closest to you to name a few. In response Huntington’s Victoria made a commitment to facilitate the Huntington’s Community Connect (HCC) peer forum and host a number of standard events to provide direct access to credible information and an opportunity to connect to those individuals with lived experience. Furthermore, in collaboration with the Huntington’s community the Blue Brigade was created to foster community connection and sense of belonging through identification as a proud member of the brigade. You are welcome to join the Blue Brigade; merchandise is available for purchase via our online store.

The HCC and Huntington’s Victoria events have been created to meet the needs of all members of the Huntington’s community regardless of their status. Please click on the event you are interested in to find out more.

Family Fun Day

Luna Park - The Pavilion 18 Lower Esplanade, St Kilda, Victoria, Australia

SAVE THE DATE!
With the success of last year’s 1st Family Fun Day, we are once again having a Family Fun Day in December. Bring along your family and friends for a fun day while building memories with family and other members of the HD community.

Included in your HV discounted ticket is a HV marquee, snacks, drinks and unlimited rides!
There are only 100 places available, so please book your tickets now so you don't miss out!

Free – $100

Annual General Meeting

Online event access details will be provided by the event organiser

The Annual General Meeting (AGM) is a formalised process where the Board presents and discusses the budget and plans of the organisation with the community or members. We will be holding this AGM online with more details to come closer to the date.  Register your attendance below!  Tuesday 14 February 2023 6:00 PM - 7:00 PM […]

Free

AAMI Park LightItUp4HD

AAMI PARK Olympic Blvd, Melbourne, Vic, Australia

Join the HV team and other members of the community for fun activities and photos as we witness AAMI Park Light up in blue for HD.

Free

Move 4 HD

Victorian Trades Hall 54 Victoria St, Carlton, VIC, Australia

Huntington’s disease was formally known as Huntington’s chorea, deriving from the Greek word for ‘dance’, due to the involuntary, dance-like movements displayed by individuals with this disease. Involuntary movements are the most recognised symptom of this disease and are often confused for other socially unacceptable behaviour. In 2017, Huntington’s Victoria created Move 4 HD: a […]

$20.00

Community Day Conference

Ian Potter Auditorium Kenneth Myer Building, 30 Royal Parade, Parkville, Victoria, Australia

Registrations closing soon! The 2023 Huntington’s Victoria Community Conference is being held at the Ian Potter Auditorium, with limited spots available. The conference will provide you with an opportunity to learn more about Huntington's disease and strategies from the lived experiences of professionals and community members. In particular, this year we will be discussing: How […]

Free

In Memory

Ian Potter Auditorium Kenneth Myer Building, 30 Royal Parade, Parkville, Victoria, Australia

This year, we will be playing our In Memory Honour Roll video at the Community Day Conference. Conference attendees will be invited to share a moment of silence to remember loved ones you have lost from Huntington's disease. If you are unable to attend the Community Day Conference, you are still welcome and encouraged to […]

HV Annual Gala Ball

191 Collins St, Melbourne VIC 3000

Huntington’s Victoria have previously hosted a number of Gala dinners in earlier years in celebration of the organisation's milestones. However, in 2012, Huntington's Victoria hosted its inaugural Annual Gala Ball in collaboration with the Huntington’s community who wanted to be able to attend a formal safe event without the fear of discrimination and have the […]

$185 – $3000

Family Fun Day

Luna Park - The Pavilion 18 Lower Esplanade, St Kilda, Victoria, Australia

Join us at Luna Park for Huntington's Victoria's third Family Fun Day! Earlier this year, the team at Huntington's Victoria challenged Tammy to give up chocolate to raise funds for this special day. Thanks to your incredible generosity, we raised $5,205, ensuring 50 members of the HD community were provided entry tickets, unlimited rides, and […]

Free