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A Conversation with Jamie
A Conversation with JamieI found out about Huntington's disease when I was quite young. Apparently, a neighbour told us, but I don't remember. It wasn't really a spoken subject in our house. So, we weren't sure what was wrong with Granddad when he started getting...
Huntington’s Community Connect: Gap analysis report published
Huntington’s Community Connect: Gap analysis report publishedThe HD community is one step closer to having an online peer support network with the publication of the gap analysis report: Peer support for the Huntington's community... by the Huntington's community....
An open letter to the Australian Huntington’s community
Fri March, 26th 2021 On 23 March 2021, the news began rolling out across the world that Roche would stop administering the treatments or placebos to patients in the GENERATION HD1 trial. More information will become available in the next weeks and months. The news...
Positive developments in the search for a HD treatment
Positive developments in the search for a HD treatmentFri December, 18th 2020 Researchers are making significant progress in the hunt for ways to treat or prevent HD with an increasing number of clinical trials planned to test promising new drugs. That was the message...
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