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Taking part in a HD clinical trial

Taking part in a HD clinical trial

Thu July, 9th 2020 For Nick Scullie the decision was, in the end, a simple one. Offered a place in a clinical trial of a promising new drug to treat Huntington’s disease he knew he had to say yes. “It was a little bit daunting, not knowing what was going to happen,...

Landmark HD gene therapy trial begins

Landmark HD gene therapy trial begins

Mon June, 29th 2020 The world’s first Huntington’s gene therapy trial is underway, testing a one-off treatment that could slow the progress of the disease for years or even decades. Two people with HD have been the first to be treated as part of the trial in the...

Huntington’s and our family

Huntington’s and our family

Fri June, 19th 2020 The Ferguson family knows all about the heartbreak of HD. The disease has taken eight members so far, across multiple generations. In the video below, family members share their memories of two of the people who have passed away, Wally Ferguson and...

Signs of HD found 24 years before symptoms

Signs of HD found 24 years before symptoms

Wed June, 17th 2020 Small changes in the brain caused by Huntington’s disease are detectable 24 years before symptoms emerge, new research shows. Researchers believe the findings will assist in identifying how early treatment should begin for people who have the...

The Hunters ready to ride for HV

The Hunters ready to ride for HV

Over 20 riders will be part of the Hunters team that is hitting the road in April to raise vital funds for Huntington’s Victoria. It is the 12th year that the Hunters have taken part in the Murray to Moyne cycle relay, a 520 kilometre ride across Victoria. Teams will...

Rising number of younger people with HD in nursing homes

Rising number of younger people with HD in nursing homes

Fri April, 24th 2020 New figures reveal a growing number of younger people with Huntington’s disease are living in residential aged care in Victoria. The Australian Institute of Health and Welfare data shows in total there were 331 people with HD in residential aged...

Clinical trials affected by COVID-19 pandemic

Clinical trials affected by COVID-19 pandemic

Thu April, 16th 2020 Clinical trials of new drugs to treat Huntington’s disease that are taking place in Australia have been affected by the COVID-19 outbreak. The pandemic has diverted many staff into frontline healthcare and will impact on the three trials being...

HV update on services during the Coronavirus outbreak

HV update on services during the Coronavirus outbreak

Wed March, 18th 2020 Huntington’s Victoria is continuing to provide services and supports to the community during the coronavirus outbreak. HV CEO Tammy Gardner said the office remains open and all staff are focused on delivering the help and support that the...

Expanding HD drug trials is a positive development

Expanding HD drug trials is a positive development

There are positive developments in important Huntington’s research taking place in Australia and other parts of the world, according to Huntington’s Victoria Chief Executive Officer Tammy Gardner. Ms Gardner said the results of drug trials that had been released so...