Huntington’s Victoria has been supporting the community since 1973. Throughout our long history, we would like to make sure that we recognise key milestone moments for the Huntington’s disease community.
1972 – The first HD clinic in Australia was established by Professor Edmond Chiu and was located in Victoria
1973 – Australian Huntington’s Disease Assocation (AHDA Vic) was formed. The was the first in Australia
1981 – Opening of the first care centre for people suffering from HD and other brain related disorders in the world. It was now known as Wesley Neurological Support Services
1993 – The gene for Huntington’s disease was discovered due to the research efforts of Nancy Wexler and her team
2004 — Establishment of the Huntington’s Research Group of Victoria (HRGV) which is the first designated research group with membership across academia and includes both clinical and community representatives.
2007 — AHDA (Vic) was successful in receiving state government funding to implement the first HD specific Individualised Support Packages
2011 — Melbourne played host to the World Congress on Huntington’s Disease. This has been the only time it has been held in Australia.
2013 — Huntington’s Victoria was accredited by the Australian Council on Healthcare Standards
2013 — Huntington’s Victoria became a registered National Disability Insurance Scheme (NDIS) provider and was instrumental in the NDIS Pilot Program in Barwon
2016 — Official rollout of the National Disability Insurance Scheme (NDIS) in Victoria.
2018 — Huntington’s Victoria celebrates 45 years of service to its community