Milestones

Huntington’s Victoria has been supporting the community since 1973. Throughout our long history, we would like to make sure that we recognise key milestone moments for the Huntington’s disease community.

HD Clinic

1972 – The first HD clinic in Australia was established by Professor Edmond Chiu and was located in Victoria  

Formation of AHDA

1973 – Australian Huntington’s Disease Assocation (AHDA Vic) was formed. The was the first in Australia  

Arthur Preston Centre

1981 – Opening of the first care centre for people suffering from HD and other brain related disorders in the world. It was now known as Wesley Neurological Support Services  

Discovery of the Huntingtin Gene

1993 – The gene for Huntington’s disease was discovered due to the research efforts of Nancy Wexler and her team  

Huntington's Research Group of Victoria

2004 — Establishment of the Huntington’s Research Group of Victoria (HRGV) which is the first designated research group with membership across academia and includes both clinical and community representatives.  

Huntington's Disease specific Individualised Support Packages

2007 — AHDA (Vic) was successful in receiving state government funding to implement the first HD specific Individualised Support Packages  

Re-branding of Australian Huntington's Disease Association (VIC)

2008 — AHDA Vic re-branded and became Huntington’s Victoria  

World Congress on Huntington's Disease

2011 — Melbourne played host to the World Congress on Huntington’s Disease. This has been the only time it has been held in Australia.

Accreditation

2013 — Huntington’s Victoria was accredited by the Australian Council on Healthcare Standards  

National Disability Insurance Scheme (NDIS) Pilot Program

2013 — Huntington’s Victoria became a registered National Disability Insurance Scheme (NDIS) provider and was instrumental in the NDIS Pilot Program in Barwon

NDIS Rollout

2016 — Official rollout of the National Disability Insurance Scheme (NDIS) in Victoria.  

Celebrating 45 years of service

2018 — Huntington’s Victoria celebrates 45 years of service to its community  

Clinical Trials

2020 — Clinical trials are underway in Melbourne  

NDIS ILC Grant - Huntington's Community Connect

2020 — Huntington’s Victoria was awarded a national grant from the NDIS to develop an online peer-to-peer forum