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Huntington’s Victoria has been supporting the community since 1973.
Throughout our long history, we would like to make sure that we recognise key milestone moments for the Huntington’s disease community.
Formation of AHDA
1973 – Huntington’s Victoria, formerly known as Australian Huntington’s Disease Association (AHDA Vic) was formed. This was the first HD association in Australia.
Huntington's Research Group of Victoria
Huntington's Disease specific Individualised Support Packages
2007 — AHDA (Vic) was successful in receiving state government funding to implement the first HD specific Individualised Support Packages.
Re-branding of Australian Huntington's Disease Association (VIC)
2008 — AHDA Vic re-branded and became Huntington’s Victoria.
World Congress on Huntington's Disease
Accreditation
2013 — Huntington’s Victoria was accredited by the Australian Council on Healthcare Standards.
National Disability Insurance Scheme (NDIS) Pilot Program
2013 — Huntington’s Victoria became a registered National Disability Insurance Scheme (NDIS) provider and was instrumental in the NDIS Pilot Program in Barwon.
NDIS Rollout
Celebrating 45 years of service
2018 — Huntington’s Victoria celebrates 45 years of service to its community.
Clinical Trials
2020 — Clinical trials are underway in Melbourne.
NDIS ILC Grant - Huntington's Community Connect
2020 — Huntington’s Victoria was awarded a national grant from the NDIS to develop an online peer-to-peer forum.
Huntington's Community Connect (HCC)
2022 — Huntington’s Community Connect national online forum was launched. This is a safe space for the community to connect and share experiences with other members of the HD community regardless of their location.
Enablement Award Adjudication
2022 — Huntington’s Victoria was adjudicated an Enablement Award for The Most Outstanding Specialist Community Organisation.