by Shreesha V | Jul 17, 2024 | Research
The AMT-130 Study An Exciting development in the Huntington’s research space. uniQure has released encouraging interim results from the AMT-130 therapy trials for Huntington’s Disease (HD). Since the trials began, AMT-130 has faced some challenges. Initial...
by Shreesha V | Jul 16, 2024 | Research
SELECT-HD Trial Update A promising step forward for the Huntington’s Disease Community Wave Life Sciences Ltd. recently announced positive results from their SELECT-HD trial (NCT05032196), a global multicenter, double-blind, placebo-controlled, Phase 1b/2a...
by Shreesha V | Jul 15, 2024 | Newsletter
Information and Awareness Newsletter July 2024 Welcome to the July edition of our newsletter! In this issue, we delve into the various factors influencing decision-making regarding predictive testing and offer practical ways to support a loved one preparing for such a...
by Shreesha V | Jun 17, 2024 | Research
A news update from SAGE therapeutics !! We are excited to announce ground-breaking results from SURVEYOR, a clinical trial focused on cognitive changes in individuals with Huntington’s disease (HD). This trial tested the short-term safety and efficacy of...
by Shreesha V | Jun 11, 2024 | News
Understanding Genetic Counselling Information Sheet We are excited to announce a new resource available on the Huntington’s Victoria website: an information sheet on genetic counselling, drafted in collaboration with Sachini Poogoda, an Associate Genetic...
by Carly Jevric | Jun 6, 2024 | Newsletter
Information and Awareness Newsletter June 2024 Welcome to the June edition of our Info and Awareness Newsletter! We extend a heartfelt thank you to everyone who contributed to May Awareness Month, making it a resounding success. This month, we delve into the profound...
by Shreesha V | Jun 4, 2024 | Research
Episode 2: Beyond the Lab With Ji-Shen Loon Wrap – Up May Awareness 2024 Exploring Wellbeing with Ji-Shen Loong Join us as we wrap up the May Awareness campaign 2024 with an insightful conversation featuring Ji-Shen Loong, a dedicated researcher focused...
by Carly Jevric | May 27, 2024 | News
A Night to Remember Go Blue May 22 and Light it Up 4 HD The 2024 May Awareness Initiatives On May 22, Federation Square in Victoria was glowing in blue as the HD community gathered to raise awareness for Huntington’s disease. We saw an overwhelming turnout,...
by Carly Jevric | May 17, 2024 | News
Early Bird Tickets Annual Gala Ball 2024 This premiere annual event is about fun and celebration, but also for learning about the impact that Huntington’s disease has on individuals and families. Attendees include medical and research partners, allied health...
by Shreesha V | May 16, 2024 | Newsletter
Information and Awareness Newsletter May 2024 Welcome to Huntington’s Victoria’s May newsletter, a part of our May Awareness Campaign! This month, we’re dedicated to empowering our community by providing a comprehensive roundup of various ways to...
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