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Palliative Care in Huntington’s Disease:

Palliative care is a service that provides support to individuals with a life limiting illness and their families; enabling access to information that provide choice and control with respect to quality of life.  Palliative care recognizes the life limiting illness within a family-centred model of care, meaning that family and carers can also receive practical and emotional support.

Who Can Access palliative care? 

You are eligible to access palliative care through the public health system when you have been diagnosed with a life-limiting illness regardless of age.

What is the purpose palliative care? 

The focus of palliative care is on living as well as possible, for as long as possible and supports can include:

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  • Relief of pain and other symptoms e.g. vomiting, shortness of breath
  • Medication management
  • Food and nutrition advice and support
  • Care and education to support better mobility and sleeping
  • Resources such as equipment needed to aid care at home
  • Assistance for families to come together to talk about sensitive issues
  • Links to other services such as home help and financial support
  • Support for people to meet cultural obligations
  • Support for emotional, social and spiritual concerns
  • Counselling and grief support for the person with the illness and their family and carers
  • Referrals to respite care services
  • Bereavement care to the family and carers once the person has died.

Who is in the palliative care team? 

A palliative care team consists of a range of health professionals and other support services including:

  • Doctors
  • Nurses
  • Allied health professionals
  • Social workers
  • Pharmacists
  • Physiotherapists
  • Occupational and speech therapists
  • Psychologists
  • Dietitians
  • Spiritual/pastoral practitioners
  • Palliative care trained volunteers.