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An open letter to the Australian Huntington’s community

An open letter to the Australian Huntington’s community

Fri March, 26th 2021 On 23 March 2021, the news began rolling out across the world that Roche would stop administering the treatments or placebos to patients in the GENERATION HD1 trial. More information will become available in the next weeks and months. The news...
Taking part in a HD clinical trial

Taking part in a HD clinical trial

Thu July, 9th 2020 For Nick Scullie the decision was, in the end, a simple one. Offered a place in a clinical trial of a promising new drug to treat Huntington’s disease he knew he had to say yes. “It was a little bit daunting, not knowing what was going to happen,...