by Carly Jevric | Nov 28, 2024 | News
Clinical Trial Update: Sage Therapeutics Sage Therapeutics Discontinue Dalzanemdor Trial We are saddened to share that the clinical trial for dalzanemdor, a drug aimed at improving cognitive challenges for people with Huntington’s disease, has been...
by Carly Jevric | Nov 26, 2024 | Newsletter
Information and Awareness Newsletter November Edition This month, we explore a topic that often goes unspoken but deserves attention: grief and loss. Grief, in its different forms, touches most of us at different points in life; whether it’s the end of a relationship,...
by Carly Jevric | Oct 14, 2024 | Newsletter
Information and Awareness Newsletter October Edition Read Newsletter Teddy is a new member of the Huntington’s Community Connect forum and has spent several years caring for her father, who has been diagnosed with Huntington’s disease. Through attending Huntington’s...
by Shreesha V | Sep 30, 2024 | Research
Beyond the Lab Episode 4 🚨 The 4th episode of our Beyond the Lab interview series is now live! 🎉 In this episode, we talk with Cali Roiboit, a Provisional Psychologist and PhD candidate in Clinical Neuropsychology at Monash University. Cali’s research focuses...
by Shreesha V | Sep 1, 2024 | News, Newsletter
Australia’s Landmark Move with Life Insurance Life Insurers Prohibited from Using Genetic Tests to Deny Coverage or Increase Premiums Following the recommendations of a report led by Monash University’s Dr. Jane Tiller and Professor Paul Lacaze, the Australian...
by Carly Jevric | Aug 28, 2024 | Research
Beyond the Lab Episode 3 🚨 The 3rd episode of our Beyond the Lab interview series is now live! 🎉 In this episode, we speak with a Clinical Trial Manager, Ajantha Rajasekar about the ethical advancements in clinical trials, the importance of informed consent, and how...
by Shreesha V | Aug 27, 2024 | Research
SKY-0515 Clinical Trial A Small Molecule Promises Big! In February 2024, Skyhawk Therapeutics, a biotechnology company at the forefront of developing innovative treatments, made a significant progress in the fight against Huntington’s disease. With no approved...
by Carly Jevric | Aug 26, 2024 | Newsletter
Information and Awareness Newsletter August 2024 Welcome to the August edition of the Information and Awareness Newsletter! This month, we focus on simple and effective ways to integrate mindfulness into your daily routine, helping you experience its powerful benefits...
by Shreesha V | Jul 17, 2024 | Research
The AMT-130 Study An Exciting development in the Huntington’s research space. uniQure has released encouraging interim results from the AMT-130 therapy trials for Huntington’s Disease (HD). Since the trials began, AMT-130 has faced some challenges. Initial...
by Shreesha V | Jul 16, 2024 | Research
SELECT-HD Trial Update A promising step forward for the Huntington’s Disease Community Wave Life Sciences Ltd. recently announced positive results from their SELECT-HD trial (NCT05032196), a global multicenter, double-blind, placebo-controlled, Phase 1b/2a...
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