SURVEYOR: Clinical Trial Update

SURVEYOR: Clinical Trial Update

A news update from SAGE therapeutics !! We are excited to announce ground-breaking results from SURVEYOR, a clinical trial focused on cognitive changes in individuals with Huntington’s disease (HD). This trial tested the short-term safety and efficacy of...
Understanding Genetic Counselling

Understanding Genetic Counselling

Information sheet: Understanding Genetic Counselling   We are excited to announce a new resource available on the Huntington’s Victoria website: an information sheet on genetic counselling, drafted in collaboration with Sachini Poogoda, an Associate Genetic...
Information and Awareness Newsletter – June

Information and Awareness Newsletter – June

Information and Awareness Newsletter June 2024 Welcome to the June edition of our Info and Awareness Newsletter! We extend a heartfelt thank you to everyone who contributed to May Awareness Month, making it a resounding success. This month, we delve into the profound...
Living Well with Huntington’s Disease

Living Well with Huntington’s Disease

Episode 2: Beyond the Lab With Ji-Shen Loon Wrap – Up May Awareness 2024 Exploring Wellbeing with Ji-Shen Loong    Join us as we wrap up the May Awareness campaign 2024 with an insightful conversation featuring Ji-Shen Loong, a dedicated researcher focused...
A Night to Remember

A Night to Remember

A Night to Remember Go Blue May 22 and Light it Up 4 HD   The 2024 May Awareness Initiatives On May 22, Federation Square in Victoria was glowing in blue as the HD community gathered to raise awareness for Huntington’s disease. We saw an overwhelming turnout,...
Early Bird Tickets!

Early Bird Tickets!

Early Bird Tickets Annual Gala Ball 2024 This premiere annual event is about fun and celebration, but also for learning about the impact that Huntington’s disease has on individuals and families. Attendees include medical and research partners, allied health...
Information & Awareness Newsletter – May

Information & Awareness Newsletter – May

Information and Awareness Newsletter May 2024 Welcome to Huntington’s Victoria’s May newsletter, a part of our May Awareness Campaign! This month, we’re dedicated to empowering our community by providing a comprehensive roundup of various ways to...
Awareness! Podcast Episode

Awareness! Podcast Episode

Awareness! Podcast Episode May 2024 Happy Huntington’s Disease Awareness Month! Let’s start May by introducing you to Kayla, a dedicated Naturopath and host of the podcast series “Awareness!”. This podcast is dedicated to shining a light on...
RSVP to Light It Up 4 HD event

RSVP to Light It Up 4 HD event

Join us this May 22nd as we get together at the Federation Square Swanston Street Forecourt for pizza and fun as the city of Melbourne lights up in blue before our eyes. Let us know if you are coming today! Where: Federation Square, Swanston St Forecourt When: 22nd...
Information and Awareness Newsletter – April

Information and Awareness Newsletter – April

Information and Awareness Newsletter April 2024 As we prepare for May Awareness, a significant moment for the Huntington’s community, it’s time for you to take centre stage. Throughout this newsletter, we delve into the importance of May Awareness and the power...