Beyond the Lab – Episode 3

Beyond the Lab – Episode 3

Beyond the Lab Episode 3 🚨 The 3rd episode of our Beyond the Lab interview series is now live! 🎉   In this episode, we speak with a Clinical Trial Manager, Ajantha Rajasekar about the ethical advancements in clinical trials, the importance of informed consent, and how...
SKY-0515: A Small Molecule Promises Big

SKY-0515: A Small Molecule Promises Big

SKY-0515 – A Small Molecule Promises Big! An Exciting development in the Huntington’s research space. In February 2024, Skyhawk Therapeutics, a biotechnology company at the forefront of developing innovative treatments, made a significant progress in the fight...
Information and Awareness Newsletter – August

Information and Awareness Newsletter – August

Information and Awareness Newsletter August 2024 Welcome to the August edition of the Information and Awareness Newsletter! This month, we focus on simple and effective ways to integrate mindfulness into your daily routine, helping you experience its powerful benefits...
The AMT-130 Study

The AMT-130 Study

The AMT-130 Study An Exciting development in the Huntington’s research space. uniQure has released encouraging interim results from the AMT-130 therapy trials for Huntington’s Disease (HD). Since the trials began, AMT-130 has faced some challenges. Initial...
The AMT-130 Study

SELECT-HD Trial Update

SELECT-HD Trial Update A promising step forward for the Huntington’s Disease Community Wave Life Sciences Ltd. recently announced positive results from their SELECT-HD trial (NCT05032196), a global multicenter, double-blind, placebo-controlled, Phase 1b/2a...
Information and Awareness Newsletter – July

Information and Awareness Newsletter – July

Information and Awareness Newsletter July 2024 Welcome to the July edition of our newsletter! In this issue, we delve into the various factors influencing decision-making regarding predictive testing and offer practical ways to support a loved one preparing for such a...
SURVEYOR: Clinical Trial Update

SURVEYOR: Clinical Trial Update

A news update from SAGE therapeutics !! We are excited to announce ground-breaking results from SURVEYOR, a clinical trial focused on cognitive changes in individuals with Huntington’s disease (HD). This trial tested the short-term safety and efficacy of...
Understanding Genetic Counselling

Understanding Genetic Counselling

Understanding Genetic Counselling Information Sheet   We are excited to announce a new resource available on the Huntington’s Victoria website: an information sheet on genetic counselling, drafted in collaboration with Sachini Poogoda, an Associate Genetic...
Information and Awareness Newsletter – June

Information and Awareness Newsletter – June

Information and Awareness Newsletter June 2024 Welcome to the June edition of our Info and Awareness Newsletter! We extend a heartfelt thank you to everyone who contributed to May Awareness Month, making it a resounding success. This month, we delve into the profound...
Living Well with Huntington’s Disease

Living Well with Huntington’s Disease

Episode 2: Beyond the Lab With Ji-Shen Loon Wrap – Up May Awareness 2024 Exploring Wellbeing with Ji-Shen Loong    Join us as we wrap up the May Awareness campaign 2024 with an insightful conversation featuring Ji-Shen Loong, a dedicated researcher focused...