Ji-Shen is currently conducting his post-doctoral study at Monash University and is looking forward to having as many community members represented in her study outcomes. He is available to answer any inquiries about his study or to discuss opportunities for involvement.

Study Name and HREC number: Living Well with Huntington’s Disease (HREC Project ID:  41021)

Researcher Name: Ji-Shen Loong

Researcher’s Contact for any questions: [email protected]

Brief description of the project including the intended aims/outcomes: Ji-Shen Loong is leading a multi-phase co-designed wellbeing study to support people living with HD and their families to live meaningful, purposeful lives. We would love to connect and collaborate across the community including those living with HD (broadly defined), family members, advocates and clinicians. We welcome people interested in the study across Australia to get in touch.

Click the button below to learn more about Ji-Shen’s study and his motivation to get into Huntington’s disease research from our conversation with him as part of our ‘Beyond the Lab’ series.