Discovering that Huntington’s disease is a part of your genetic history can have a ripple effect on your life and those around you. All at once you can experience a rush of emotions: anger, sadness, confusion, isolation and disconnection from those closest to you to name a few. In response Huntington’s Victoria made a commitment to facilitate the Huntington’s Community Connect (HCC) peer forum and host a number of standard events to provide direct access to credible information and an opportunity to connect to those individuals with lived experience. Furthermore, in collaboration with the Huntington’s community the Blue Brigade was created to foster community connection and sense of belonging through identification as a proud member of the brigade. You are welcome to join the Blue Brigade; merchandise is available for purchase via our online store.

The HCC and Huntington’s Victoria events have been created to meet the needs of all members of the Huntington’s community regardless of their status.  Please find below an outline of the HCC and a list of our standard Huntington’s Victoria Community Events for your information:

Huntington’s Victoria Annual Gala Ball

Huntington’s Victoria hosted the first Gala Ball in 2012 in collaboration with the Huntington’s community who wanted to be able to attend a formal safe event without the fear of discrimination and have the opportunity to share experiences with individuals like themselves.

This premiere annual event is a gathering for community members directly impacted by Huntington’s disease and intends to raise vital awareness. Attendees include medical and research partners, allied health professionals, corporate partners, supporters and most importantly the Huntington’s community. If you have not attended an event before please do so you are most welcome.

Learn more and book your tickets here…