Huntington’s Disease Awareness Month

Internationally, May is the awareness-raising month for Huntington’s disease. The driving force behind the May Awareness campaign is to provide all members of the Huntington’s community with an opportunity to connect and learn from each other as well as educating others not directly impacted by Huntington’s disease. Huntington’s Victoria was the first Australian Huntington’s disease specific organisation to join the May Awareness campaign in 2004 which has now expanded to include Light It Up 4 HD in 2017 and Go Blue May 22 since 2019.

Our events for May Awareness each year are:

If you are interested in hosting an event this May, see the resources below!

This May, we are gathering at Federation Square to see the city light up in blue for Huntington’s disease with a slice of pizza! 

Resources available

There are many ways you can participate in May Awareness, and your level of involvement is entirely up to you. If you would like some ideas on how you can get involved with your community to help raise awareness and funds for Huntington’s Disease, download our Huntington’s Disease May Awareness Resource Pack on the right. Inside you will find valuable information about May Awareness and where you can start.

For additional support or enquiries, please feel free to reach out to our Information and Support team here

Download a sign to hold in your May Awareness photos!