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Discovering that Huntington’s disease is a part of your genetic history can have a ripple effect on your life and those around you. All at once you can experience a rush of emotions: anger, sadness, confusion, isolation and disconnection from those closest to you to name a few. In response Huntington’s Victoria made a commitment to facilitate the Huntington’s Community Connect (HCC) peer forum and host a number of standard events to provide direct access to credible information and an opportunity to connect to those individuals with lived experience. Furthermore, in collaboration with the Huntington’s community the Blue Brigade was created to foster community connection and sense of belonging through identification as a proud member of the brigade. You are welcome to join the Blue Brigade; merchandise is available for purchase via our online store.
The HCC and Huntington’s Victoria events have been created to meet the needs of all members of the Huntington’s community regardless of their status. Please click on the event you are interested in to find out more.
Join us at Luna Park for Huntington's Victoria's third Family Fun Day! Earlier this year, the team at Huntington's Victoria challenged Tammy to give up chocolate to raise funds for this special day. Thanks to your incredible generosity, we raised $5,205, ensuring 50 members of the HD community were provided entry tickets, unlimited rides, and […]
Huntington’s Victoria have previously hosted a number of Gala dinners in earlier years in celebration of the organisation's milestones. However, in 2012, Huntington's Victoria hosted its inaugural Annual Gala Ball in collaboration with the Huntington’s community who wanted to be able to attend a formal safe event without the fear of discrimination and have the […]
This year, we will be playing our In Memory Honour Roll video at the Community Day Conference. Conference attendees will be invited to share a moment of silence to remember loved ones you have lost from Huntington's disease. If you are unable to attend the Community Day Conference, you are still welcome and encouraged to […]
