A Celebration of Huntington’s Victoria
Huntington’s disease awareness, research, and support in Australia is continuously growing with each year bringing us one step closer to a cure. Here you can witness the efforts of Huntington’s Victoria as well as those who have been there throughout this journey. Let’s continue to raise awareness, provide support, and advance our understanding of Huntington’s disease.
With 50 years of service to the Huntington’s disease community, we have…
members of the Huntington’s disease community to date
Responded to over
dollars for Huntington’s disease.
This detailed timeline showcases the journey and progress that Huntington’s Victoria has made over the last 50 years, and recognises those who helped to get us to where we are today.
Formation of Australian Huntington’s Disease Association Victoria. The organisation becomes the first of its kind in Australia and the third internationally.
First Family Retreat was held in Torquay, providing short-term relief to families affected by Huntington’s Disease. This retreat becomes the first of its kind in the world.
Sponsored the premiere of the film “Bound for Glory” at Rivoli Theatre in Camberwell. The film is based on Woody Guthrie’s autobiography. All proceeds from the premiere and a Woody Guthrie album went to the Australian Huntington’s Disease Association Victoria.
The organisation secures its first office space on the 15th Floor, 60 Albert Rd, South Melbourne.
Hosted the first Huntington’s Disease Conference in Australia in collaboration with the University of Melbourne and Wesley Central Mission.
Received the first successful State Government Grant allowing the organisation to employ a Welfare Officer.
Adopted the International icon for Huntington’s Disease, the amaryllis.
Received the first successful State Capital Government Grant for a Group Residence at Jellicoe St, Box Hill South.
Recognised as a service delivery agency, allowing for the employment of full-time welfare workers, a part-time office worker, and a part-time bus driver.
Australian Huntington’s Disease Association Victoria turns 20 years old.
Tomasetti House, a group residence, is built with the generosity of the Tomasetti family at 5 Summerhill Road, Glen Iris.
AHDA purchases a property at 607 Warrigal Rd, Ashwood, becoming the association’s home until 2009.
AHDA publishes its first article, “Huntington’s Disease: An Update,” in the Australian Social Work Journal.
Released the first documentary in Australia on genetic testing, titled “Freedom of Choice”.
Launched the HD Awareness Road Show, covering 31,000kms and educating the community about genetic testing and the impact of Huntington’s Disease.
Inaugural National Huntington’s Disease Awareness Day.
Published Working Papers on Huntington’s Disease & The Existing Service System in Victoria.
Published “Kaleidoscope” with funding from Ivy Ayris and Norman Gunn bequest.
Received a one-off grant for the Flexible Support Package Pilot funding from the Department of Human Services.
Hosted our second National HD Conference in Melbourne with the theme “Another piece of the puzzle.”
Restructured AHDA into Support Services, Service Development, and Consumer Advisory Committee.
Received state government funding for the first HD specific Individualised Support Packages.
Rebranded as Huntington’s Victoria, launching a new website and logo.
Relocated to new premises in Hawthorn, chosen for its central position and proximity to public transport, freeway access, and HD specialist clinic locations.
Melbourne hosted the World Congress on Huntington’s Disease. Huntington’s Victoria was a member of the organising committee and hosted the Family Day in line with this congress.
Hosted the inaugural Annual Gala Ball.
Accredited by the Australian Council on Healthcare Standards.
Provided NDIS services and participated in the NDIS Pilot Program in Barwon.
Launched the Huntington’s Community Conference, inspired by the 2011 Huntington’s Disease World Congress Family Day.
Joined the global “Light It Up 4 HD” campaign by lighting up the Melbourne City Town Hall in Blue, being the first Australian Huntington’s disease association to take part.
Launched “Move 4 HD,” a dance initiative celebrating a person’s ability to move and participate.
Launched the “Go Blue 4 May 22” campaign to build awareness of Huntington’s disease.
Adjudicated an Enablement Award for The Most Outstanding Specialist Community Organisation.
Celebrated 50 years of service to the Huntington’s Disease Community.