Support Coordination

At Huntington’s Victoria our all our Support Coordinators have expertise and knowledge of Huntington’s disease and the effect this has on people’s lives, as well as a great understanding of the NDIS. Our Support Coordination service values people as individuals and works from a holistic perspective, not only supporting clients with implementing their plan, but also with accessing mainstream supports and services.

The Support Coordination service is able to assist you with: 

  • Understanding your NDIS plan, goals and how your funding works
  • Assisting you in maintaining your independence
  • Exploring what activities and support you might like
  • Connecting you to a range of providers so you can choose who supports you
  • Supporting you in implementing and monitoring your NDIS plan
  • Managing your supports within your NDIS budget
  • Establishing service agreements with providers to ensure your needs are met
  • Building your capacity to maintain relationships with the people and service supporting you
  • Coordinating and collaborating with the people involved in your life and your care
  • Supporting you with planning for life transitions
  • Supporting you in keeping safe while maintaining dignity of choice
  • Supporting you in preparing for your plan review so that you can advocate for yourself
  • Assisting you in setting up a MyGov account and the NDIS Participant Portal

Specialist Support Coordination

Huntington’s Victoria is also able to provide Specialist Support Coordination as well. Specialist Support Coordination is a time-limited service that is available to assist people with Huntington’s disease who have complex needs or significant risk concerns.

In addition to the points listed above, Specialist support coordination also includes:

  • Responding to crises and creating a plan that reduces risks to you and others.
  • Liaising with specialist services such as Specialist Behavioural Support Services, Education system, Justice System, Office for Public Advocates, State Trustees and Housing and Homelessness services and Specialist Allied Health.


Support Coordination is available for individuals diagnosed with Huntington’s disease or other progressive neurological condition (upon further discussion) who already have an approved NDIS plan with allocated Support Coordination Funding. If you do not have support coordination in your plan and would like assistance to access this, please contact us to discuss further.  

Hello! I’m Keith, support coordination client, VIC

I have been with Huntington’s Victoria since my first plan in 2018. I choose Huntington’s Victoria to help me with my plan because they listen to me, got to know who I am as a person, and they understand my support need. They also explain my NDIS plan to me and help me to make informed decisions about my services. My Support Coordinator is happy to speak with my family too and to help me with arranging my Huntington’s disease specialist appointments. My support coordinator also understands that sometimes things happen and helps me to resolve these issues so it doesn’t impact on my plan.

Support Coordination Client at Huntington's Victoria