Campaigns to Effect Change in Huntington’s Disease

At our organisation, we prioritise running campaigns that address the pressing concerns identified by our community members, ensuring their voices are heard and supported. One notable campaign we have undertaken is our initiative to advocate for the accessibility of IVF-Pre-Implantation Genetic Diagnosis (PGD) as a viable family planning option for all individuals within our Huntington’s disease community.

As a community-led organisation, we firmly believe in being the voice for our community, rather than speaking on their behalf. We empower our members to drive the conversation and advocate for the issues that matter most to them.

Running campaigns allows us to…

Raise Awareness

Inspire and Stimulate Support

Effect Change on Issues

By engaging in advocacy efforts, we aim to improve access to resources, advance research, and ultimately enhance the quality of life for those affected by this condition.


If you have a particular issue you would like us to address or support, we encourage you to reach out to us. Together, we can explore ways to make a meaningful impact and create positive change within our community.