At our organisation, we prioritise running campaigns that address the pressing concerns identified by our community members, ensuring their voices are heard and supported. One notable campaign we have undertaken is our initiative to advocate for the accessibility of IVF-Pre-Implantation Genetic Diagnosis (PGD) as a viable family planning option for all individuals within our Huntington’s disease community.

As a community-led organisation, we firmly believe in being the voice for our community, rather than speaking on their behalf. We empower our members to drive the conversation and advocate for the issues that matter most to them.

By engaging in advocacy efforts, we aim to improve access to resources, advance research, and ultimately enhance the quality of life for those affected by this condition.