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Education Sessions
Empowering the Huntington’s Disease Community
At Huntington’s Victoria, we believe in empowering those affected by Huntington’s disease—whether individuals, families, carers, or service providers—by providing the knowledge, skills, and support needed to navigate the journey with confidence and resilience.
Our education sessions are crafted to be informative, practical, and community-focused, fostering an understanding of the unique challenges Huntington’s disease may present while building networks of support.
What We Offer
Diverse and Engaging Education Topics
Our sessions cover a broad range of topics designed to benefit:
• Individuals with HD and Their Families: Providing personalised guidance to help tackle daily challenges and make empowered decisions.
• Primary and Informal Supports: Training friends, family, and carers to offer meaningful, compassionate support.
• Service Providers, Educators, and Support Staff: Offering HD-specific training to deepen understanding and improve support for individuals in the HD community, including children and adolescents at risk.
Key Topics Covered
- Overview of Huntington’s Disease
- Impacted Areas of the Brain
- Symptomology of Huntington’s Disease
- Emotional and Psychological Support
- Creating a Structured Routine and Environment
- Safety Protocols and Risk Management
- Unique Challenges in Supported Residential Care
- Handling Accelerated Deterioration
- End of Life Care and Advance Planning
- Our Services
- Q & A
Modes of Delivery: Flexible Learning Options
We understand the importance of accessibility and convenience. Our sessions are available both in-person and virtually, allowing you to choose the format that best suits your needs and location.
Tailored Education Sessions
For Education Institutions
Our dedicated sessions for schools and educational institutions support students at risk of Huntington’s disease, their primary carers, and teachers. These sessions provide essential tools and insights to help ensure the emotional well-being, learning experience, and developmental needs of students impacted by Huntington’s disease are met.
For the Justice System
Our specialised sessions for justice institutions provide crucial tools and insights for supporting individuals affected by Huntington’s disease—whether at risk, gene-positive, or symptomatic—who have encountered the police, legal system, prison system, or related justice institutions. These sessions aim to enhance the well-being, safety, and appropriate care of individuals impacted by Huntington’s disease, and extend essential support to their carers. Additionally, these sessions equip correctional and justice system staff with the understanding and strategies needed to deliver effective, compassionate support for those affected by Huntington’s disease.
Types of Sessions and Pricing
We offer various formats designed to accommodate individual needs and group settings, making Huntington’s disease education accessible to both community members and professional audiences. Each session is led by experienced professionals with deep knowledge of Huntington’s disease care and support.
For HD Community Members and Informal Supports
- Training for HD-specific informal caring roles
- Focused on essential skills and strategies tailored to the needs of individuals with HD.
For Support Workers, Healthcare Providers, and Educators
- Comprehensive training in Small Group Sessions (1-12 people)
- Comprehensive training designed for support workers, healthcare providers, and educators.
For Support Workers, Healthcare Providers, and Educators
- Larger Group Sessions (13-24 people)
- Ideal for larger teams, offering a balance of interaction and in-depth presentation on HD topics.
For Large Groups
- Custom Quotes for Groups of 24+
- We provide tailored packages to meet the specific needs and goals of larger organisations.
Education Session Referral
Our goal is to equip all attendees with the tools, confidence, and community needed to effectively support individuals affected by Huntington’s disease.
To make a referral for this service please click on the button below. Alternatively, contact us for more information or to customise a session to meet your unique needs.