Becoming the expert through sharing knowledge and experience

The Community Conference this year starts off with members of the Huntington’s disease community who share their experiences and knowledge in terms of living with Huntington’s disease. Everyone’s story and experiences are different when it comes to Huntington’s disease, but it is how we can come together as a community to share our knowledge and to help empower others, that we have in common.

The Q and A session is facilitated by Tammy Gardner and covers specific topics and questions for our session speakers.

What you need to know to safeguard your rights

This section covers the topic of safeguarding your rights. We hear about powerful ways you can advocate for yourself through Jane Tiller’s interview of Insurance and Genetic Discrimination and Rosemary Barker’s interview on Community Visitors Program and Independent Third Person. 

The Q and A session is facilitated by Tammy Gardner and covers specific topics and questions for our session speakers.

Research

The final session at the Huntington’s Victoria Community Conference included a presentation from Sarah Tabrizi and facilitated discussion with professionals from Roche and Wave about the various stages of a drug trial and what is different about a Huntington’s disease drug trail compared with out disease groups.