Education Sessions

Empowering the Huntington’s Disease Community

At Huntington’s Victoria, we believe in empowering those affected by Huntington’s disease—whether individuals, families, carers, or service providers—by providing the knowledge, skills, and support needed to navigate the journey with confidence and resilience.

Our education sessions are crafted to be informative, practical, and community-focused, fostering an understanding of the unique challenges Huntington’s disease may present while building networks of support.

What We Offer

Diverse and Engaging Education Topics

Our sessions cover a broad range of topics designed to benefit:
• Individuals with HD and Their Families: Providing personalised guidance to help tackle daily challenges and make empowered decisions.
• Primary and Informal Supports: Training friends, family, and carers to offer meaningful, compassionate support.
• Service Providers, Educators, and Support Staff: Offering HD-specific training to deepen understanding and improve support for individuals in the HD community, including children and adolescents at risk.

Key Topics Covered

Overview of Huntington’s Disease
Impacted Areas of the Brain
Symptomology of Huntington’s Disease
Emotional and Psychological Support
Creating a Structured Routine and Environment
Safety Protocols and Risk Management
Unique Challenges in Supported Residential Care
Handling Accelerated Deterioration
End of Life Care and Advance Planning
Our Services
Q & A

Modes of Delivery: Flexible Learning Options
We understand the importance of accessibility and convenience. Our sessions are available both in-person and virtually, allowing you to choose the format that best suits your needs and location.

Tailored Education Sessions

For Education Institutions

Our dedicated sessions for schools and educational institutions support students at risk of Huntington’s disease, their primary carers, and teachers. These sessions provide essential tools and insights to help ensure the emotional well-being, learning experience, and developmental needs of students impacted by Huntington’s disease are met.

For the Justice System

Our specialised sessions for justice institutions provide crucial tools and insights for supporting individuals affected by Huntington’s disease—whether at risk, gene-positive, or symptomatic—who have encountered the police, legal system, prison system, or related justice institutions. These sessions aim to enhance the well-being, safety, and appropriate care of individuals impacted by Huntington’s disease, and extend essential support to their carers. Additionally, these sessions equip correctional and justice system staff with the understanding and strategies needed to deliver effective, compassionate support for those affected by Huntington’s disease.

Types of Sessions

We offer a variety of educational formats designed to meet the needs of both individual and group settings, ensuring that Huntington’s disease education is accessible to community members and professionals alike. Led by experienced experts, our sessions provide a deep, practical understanding of Huntington’s disease care and support.

Recognising the complexities of Huntington’s disease, we understand that providing effective care requires a comprehensive approach. Our educational sessions are designed to equip participants with essential knowledge and practical tools, empowering them to manage the challenges ahead with confidence.

What You Can Expect:

Tailored Preparation: We begin by consulting with key stakeholders to ensure the training is aligned with your unique needs and goals, customising each session for maximum relevance.
Collaborative Group Learning: Engage in an interactive session that promotes shared learning, providing both in-depth understanding and practical applications.
Expert-Led Professional Training: Benefit from specialised guidance through a focused session that enhances your ability to provide informed, high-quality care.
Customised Learning Packages: Our training is adaptable, ensuring we address your specific concerns and challenges to maximise impact.
Live Q&A with Experts: Participate in real-time discussions with Huntington’s disease professionals, receiving tailored insights and advice that you can immediately apply to your practice.
Ongoing Support & Resources: Our information team is available for follow-up support and additional guidance when needed.

Session Pricing

To ensure fairness and accessibility, our pricing aligns with the Consumer Price Index (CPI) and reflects the costs of expert-led training. Travel fees apply at $1 per kilometre.

For HD Community Members and Informal Supports (In-person and Virtual)

Training for HD-specific informal caring roles
Focused on essential skills and strategies tailored to the needs of individuals with HD.

For Support Workers, Healthcare Providers, and Educators (In-person and Virtual)

Comprehensive training in Small Group Sessions (1-12 people)
Comprehensive training designed for support workers, healthcare providers, and educators.

For Support Workers, Healthcare Providers, and Educators (In-person and Virtual)

Larger Group Sessions (13-24 people)
Ideal for larger teams, offering a balance of interaction and in-depth presentation on HD topics.

For Large Groups (In-person and Virtual)

Huntingtons disease victoria education session pricing

Custom Quotes for Groups of 24+
We provide tailored packages to meet the specific needs and goals of larger organisations.

Education Session Referral

Navigating Huntington’s disease can be complex, but support is available every step of the way. Our education sessions equip you with the knowledge, skills, and confidence to provide informed care and make a meaningful impact.

Ready to Learn More? Contact us today to discuss your training needs and how we can support you.

To make a referral for this service please click on the button below.

Make a Referral