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Who is Hope?
For those of you who are subscribed to our monthly newsletter, you would be well aware of our newest member of the Huntington’s Victoria team. Hope is someone that you can rely on to provide you with reliable and relevant information so that you can continue to be as informed as possible and able to live independent lives. Hope is also someone that you can rely on for great cuddles…take a look here!
When you see the Hope stamps on any piece of information disseminated by Huntington’s Victoria, you know that that piece of information is verified, credible and current. Once a month, Hope shares information on different topics that can help you to do just that. You are welcome to join the mailing list below, so you do not miss out!
What is Hope’s Monthly Newsletter?
Hope’s monthly Information and Awareness Newsletter is your gateway to a deeper understanding of Huntington’s disease. Whether you’re navigating the challenges of living with this condition, exploring its intricate nature, or delving into its history, Hope guarantees you comprehensive insights. Embark on this journey with us to expand your knowledge and stay well-informed about all aspects of Huntington’s disease.
Join our mailing list here!
The AMT-130 Study
The AMT-130 Study An Exciting development in the Huntington’s research space.uniQure has released encouraging interim results from the AMT-130 therapy trials for Huntington's Disease (HD). Since the trials began, AMT-130 has faced some challenges. Initial treatments...
Hope’s Stamps
In this current environment where online and virtual service is a “new normal”, the community are now able to instantaneously access limitless information on Huntington’s disease via a simple search through Google and/or other web search engines. There is a great deal of information available that is not evidence-based, peer reviewed and credible as well as not presented in a way that is accessible and easily understood by a layperson.
It is essential that our community has access to verified, credible and current information by which to make informed choices. In order to give the community that assurance, we have created our “Evidence of trust” stamp that will be located on all information Huntington’s Victoria makes available to our community.
The stamp is a way to provide evidence that the community can trust, use and share the information and content with confidence.
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The presence of “Educator” stamp on a content indicates that the document is up-to-date and credible |
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The presence of “Information” stamp on a content indicates that the document is up-to-date and credible |
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The icon means “empowering the HD community as well as the HV team to make a difference”
The presence of “Enabler” stamp on a content indicates that the document is up-to-date and has been endorsed by HV Quality team.
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