Information and Awareness Newsletter

June 2024


Welcome to the June edition of our Info and Awareness Newsletter! We extend a heartfelt thank you to everyone who contributed to May Awareness Month, making it a resounding success.

This month, we delve into the profound impact of sharing and accessing lived experiences with Huntington’s disease. By opening up and exchanging stories, we can provide invaluable support and clarity to one another, helping to navigate the journey with Huntington’s disease with greater confidence and understanding.

Our newsletter features snippets of advice and words of wisdom from our vibrant community members, offering practical insights and heartfelt encouragement. Additionally, we are thrilled to release the second edition of “The Power of Sharing Your Story,” featuring Bek Donnelly and her father, Keith. Their touching narrative underscores the strength and unity found in sharing personal experiences.

Join us in this edition as we celebrate the power of community and the significance of sharing our stories. Together, we can make a difference.

We hope this piece resonates with you in some way and inspires you to share your experiences, bringing more hope to those navigating their own HD journeys. Please feel free to contact us should you have any questions.