by admin | Mar 26, 2021 | News
Fri March, 26th 2021 On 23 March 2021, the news began rolling out across the world that Roche would stop administering the treatments or placebos to patients in the GENERATION HD1 trial. More information will become available in the next weeks and months. The news...
by admin | Dec 18, 2020 | News
Positive developments in the search for a HD treatment Fri December, 18th 2020 Researchers are making significant progress in the hunt for ways to treat or prevent HD with an increasing number of clinical trials planned to test promising new drugs. That was the...
by admin | Oct 7, 2020 | News
Community conference to be held in December Fri August, 21st 2020 The 9th annual HV Community Day is being turned into a two day virtual conference this year. Huntington’s Victoria CEO Tammy Gardner said the COVID-19 pandemic would not stop the expanded event going...
by admin | Oct 6, 2020 | News
Fri July, 17th 2020 New research involving the HD community is set to begin after Huntington’s Victoria secured grant funding from the NDIS Information, Linkages and Capacity Building (ILC) program. The research will aim to take a closer look at the prevalence of HD...
by admin | Oct 6, 2020 | News
Thu July, 9th 2020 For Nick Scullie the decision was, in the end, a simple one. Offered a place in a clinical trial of a promising new drug to treat Huntington’s disease he knew he had to say yes. “It was a little bit daunting, not knowing what was going to happen,...
by admin | Oct 6, 2020 | News
Mon June, 29th 2020 The world’s first Huntington’s gene therapy trial is underway, testing a one-off treatment that could slow the progress of the disease for years or even decades. Two people with HD have been the first to be treated as part of the trial in the...
by admin | Oct 6, 2020 | News
Fri June, 19th 2020 The Ferguson family knows all about the heartbreak of HD. The disease has taken eight members so far, across multiple generations. In the video below, family members share their memories of two of the people who have passed away, Wally Ferguson and...
by admin | Oct 6, 2020 | News
Wed June, 17th 2020 Small changes in the brain caused by Huntington’s disease are detectable 24 years before symptoms emerge, new research shows. Researchers believe the findings will assist in identifying how early treatment should begin for people who have the...
by admin | Oct 6, 2020 | News
Fri April, 24th 2020 New figures reveal a growing number of younger people with Huntington’s disease are living in residential aged care in Victoria. The Australian Institute of Health and Welfare data shows in total there were 331 people with HD in residential aged...
by admin | Oct 6, 2020 | News
Thu April, 16th 2020 Clinical trials of new drugs to treat Huntington’s disease that are taking place in Australia have been affected by the COVID-19 outbreak. The pandemic has diverted many staff into frontline healthcare and will impact on the three trials being...
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