CEO Update March 2022 Dear valued community members and colleagues, As COVID restrictions begin to wind down, it is timely to reintroduce the CEO updates to provide you all with regular reports on the work HV has been involved in on behalf of our community. This year...
Genetic Testing: A Checklist 2 With Huntington’s Victoria Supports to consider? The genetic testing process can be an emotional one so it is important to have a support network available to you. This checklist has been created to help you identify the support...
A Conversation with Katie The first time I ever heard of Huntington’s was when I was 15. I had never heard of it. Didn’t know it was in our family. And then my mum told me that she’d been tested and that she was gene positive and that her grandmother...
Genetic Testing: A Checklist With Huntington’s Victoria What To Consider: Who is eligible? You need to be considered at risk of Huntington’s disease (HD) with known or suspected history of HD in your biological family. There are guidelines for genetic...
A Conversation with Jamie I found out about Huntington’s disease when I was quite young. Apparently, a neighbour told us, but I don’t remember. It wasn’t really a spoken subject in our house. So, we weren’t sure what was wrong with Granddad...
Huntington’s Community Connect: Gap analysis report published The HD community is one step closer to having an online peer support network with the publication of the gap analysis report: Peer support for the Huntington’s community… by the...
What causes Huntington’s disease and what role do genes and environment play? Professor Anthony HannanNHMRCH Principal Research Fellow & Laboratory Head, Florey Institute of Neuroscience and Mental Health HD is one of a growing number of human diseases known to...
Can Non-Invasive Brain Stimulation be used to treat apathy in Huntington’s Disease? Marie-Claire DavisClinical Neuropsychologist PhD CandidateMonash University I am comparing different ways of using tACS to find the most effective way of changing brain activity and...
Gut-Brain Health in Huntington’s Disease Cory WasserDoctor of Psychology in Clinical Neuropsychology CandidateMonash University Surprisingly, it’s now known that the gut and brain interact extensively. Why is the gut important in Huntington’s Disease? The gut is...
Apathy in Huntington’s Disease Kelly AtkinsDoctor of Psychology in Clinical Neuropsychology CandidateMonash University This symptom impacts greatly on people’s quality of life, as it impacts on relationships with friends and families. Why is apathy important in...
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