by Carly Jevric | Apr 4, 2025 | Newsletter
Information and Awareness Newsletter March Edition For the March edition of the Information and Awareness Newsletter, we bring to you another special edition of The Power of Sharing Your Story featuring Michelle – a young woman living with Huntington’s...
by Carly Jevric | Mar 5, 2025 | Newsletter
Information and Awareness Newsletter February Edition For the February edition of the Information and Awareness Newsletter, we are diving into the National Disability Insurance Scheme (NDIS) and how it can support individuals impacted by Huntington’s disease....
by Shreesha V | Feb 13, 2025 | Research
Beyond the Lab Episode 5 🚨 The 5th episode of our Beyond the Lab interview series is now live! 🎉 We’re starting this year’s series with a special episode featuring Professor Ed Wild, a leading researcher and one of the co-founders and editors-in-chief of HDBuzz. As...
by Carly Jevric | Jan 23, 2025 | Newsletter
Information and Awareness Newsletter January Edition Welcome to the first edition of the Information and Awareness Newsletter for 2025! Hear from the team at Huntington’s Victoria on some of their favourite moments of 2024, and take a sneak peak at the events to...
by Carly Jevric | Dec 20, 2024 | Newsletter
Information and Awareness Newsletter December Edition As 2024 wraps up, we’re excited to bring you the final edition of the Information and Awareness Newsletter. This year, we covered a variety of topics, from wellness tips to inspiring personal stories. We hope these...
by Carly Jevric | Nov 28, 2024 | News
Clinical Trial Update: Sage Therapeutics Sage Therapeutics Discontinue Dalzanemdor Trial We are saddened to share that the clinical trial for dalzanemdor, a drug aimed at improving cognitive challenges for people with Huntington’s disease, has been...
by Carly Jevric | Nov 26, 2024 | Newsletter
Information and Awareness Newsletter November Edition This month, we explore a topic that often goes unspoken but deserves attention: grief and loss. Grief, in its different forms, touches most of us at different points in life; whether it’s the end of a relationship,...
by Carly Jevric | Oct 14, 2024 | Newsletter
Information and Awareness Newsletter October Edition Read Newsletter Teddy is a new member of the Huntington’s Community Connect forum and has spent several years caring for her father, who has been diagnosed with Huntington’s disease. Through attending Huntington’s...
by Shreesha V | Sep 30, 2024 | Research
Beyond the Lab Episode 4 🚨 The 4th episode of our Beyond the Lab interview series is now live! 🎉 In this episode, we talk with Cali Roiboit, a Provisional Psychologist and PhD candidate in Clinical Neuropsychology at Monash University. Cali’s research focuses...
by Shreesha V | Sep 1, 2024 | News, Newsletter
Australia’s Landmark Move with Life Insurance Life Insurers Prohibited from Using Genetic Tests to Deny Coverage or Increase Premiums Following the recommendations of a report led by Monash University’s Dr. Jane Tiller and Professor Paul Lacaze, the Australian...